This Privacy Policy describes how Frankie Says Fight Rett.org, Inc. ("we," "us," or "our") collects, uses, and discloses your information when you visit our website, frankiesaysfightrett.org (the "Site").

Information We Collect

We collect the following information when you use the Site:

• Log Data: When you visit the Site, we automatically collect information about your device, including your IP address, browser type, operating system, referral URLs, and the pages you visit on the Site.

• Contact Information: If you contact us through the Site, you may provide us with your name and email address.

 

How We Use Your Information

We use the information we collect for the following purposes:

• To operate and maintain the Site

• To understand how visitors use the Site

• To respond to your inquiries and requests

• To send you information about Rett syndrome and our organization (with your consent)

• To comply with legal and regulatory obligations

 

Sharing Your Information

We will not share your information with any third party without your consent, except in the following cases:

• To service providers who help us operate the Site, such as web hosting providers and email marketing services. These service providers are only authorized to use your information for the purpose of providing us with their services.

• To comply with a legal requirement, such as a court order or subpoena.

• To protect the rights and safety of ourselves, our users, or others.

 

Data Retention

We will retain your information for as long as it is necessary to fulfill the purposes described in this Privacy Policy, unless a longer retention period is required or permitted by law.  

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Children's Privacy

The Site is not directed to children under the age of 13. We do not knowingly collect personal information from children under 13. If you are a parent or guardian and you believe your child has provided us with personal information, please contact us and we will delete the information from our records.  

Your Choices  

You have the following choices regarding your information:

• You can opt out of receiving email communications from us by clicking the unsubscribe link at the bottom of our emails.

• You can request that we delete your information by contacting us.

 

Security

We take reasonable measures to protect your information from unauthorized access, disclosure, alteration, or destruction. However, no website is completely secure, and we cannot guarantee the security of your information.  

Changes to this Privacy Policy

We may update this Privacy Policy from time to time. We will post the updated Privacy Policy on the Site. You are advised to review the Privacy Policy periodically for any changes.  

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Contact Us

If you have any questions about this Privacy Policy, please contact us at:  

fsfr.cgc@gmail.com

 

Effective Date

This Privacy Policy is effective as of November 18, 2024.